The Patient Experience: How to Manage Being a Patient
Published October 2023 Available on Amazon – Buy Now The Patient Experience charts a patient’s journey beginning with descriptors of a ‘normal’ patient versus one with chronic complex and long-term conditions. There is a particular description of the medical conditions Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorder, as these terms are used more than any other patient-condition. There are examples of a patient CV and ‘job description’ before charting the patient




